I've learned a couple things. One, she will not tolerate the alternate delivery route. I need to find meds that can be delivered via IV or orally dissolved. She is still surprisingly strong and resistant. So secondarily, I need to have a helper 24x7. I'm strong, but I cannot maneuver her on her bed alone nor take care of keeping her clean. Any resistance is not futile, it works. At least against one person. She also has pain when moved so it needs to be a team effort. Thirdly, we need to change her anti-seizure meds. She went without last night and this morning. Trying to make that happen on a Sunday will be a challenge. But hospice is working on it.
So, here's plan. I'm letting her sleep some before giving her the easy meds (delivered through a gel rubbed into skin). I'll give her anti-nausea meds through her port. If there is pain, I'll add morphine. If she's agitated, I'll add Haldol, which worked last night when crushed and mixed with a little water. They are going to get me more of these either delivered or to be picked up. When my aide gets here at 8am we will get her cleaned up. I'll then call the service and have them arrange someone here 8pm to 8am so I have coverage 22x7, giving us a couple hours in the evening of private time. Lastly we will get her on a substitute anti-seizure med, likely phenobarbital, which will also have some sedative properties helping her agitation.
A verrrry stressful evening. Hoping for a nap this morning.