August 15. Results from CT scan show new tumor near tailbone area causing pain. Treatable with radiation. Also identified was cancer infiltration of the spine - not treatable according to Dr. Kaplan. Meeting with Dr. Kaplan on Tuesday the 16th to discuss specifics and full extent.
After further MRIs and analysis, she was referred to Dr. Landis at Swedish's Cancer Institute where she will undergo radiation treatment of the spine using Tomo Therapy. She will have 3-4 weeks of radiation, 5 days a week, for about 12 minutes each time. They have identified twelve tumors, plus expect there is cancer in the spaces in between. The Tomo Therapy radiation treatment can bathe the entire spinal column epidural space with radiation without hitting the actual spinal cord or other internal organs. This is not a cure but does buy time, at presumably a high quality of life.
August 22. Met with Dr. Landis. Had initial CT planning session. Radiation started August 25 at 11:30am.
Sept. 16th. 15 radiation treatments completed. Will have follow-up scans in 45 days or so. On the 16th had a brain MRI as follow-up to the gamma knife treatment of the previously discovered and treated tumors and to see if there are any new brain tumors. Results meeting with Dr. Vermeulen on Monday the 19th. She is still on Temodar (chemotherapy) and all the other medications (steroids, anti-seizure).
Sept. 19th. Two brain tumors detected. Gammaknife radiation treatment scheduled.
Sept. 29. Pre-treatment scan revealed three more brain tumors. All five were addressed by Gammaknife treatment. Post treatment sude effects included more memory and cognition issues.
Oct. 12. Severe pain in right arm, shoulder and neck. Three MRIs did not reveal cause. Referred to neurologist. Nerve conduction study scheduled for Oct. 24. Brain MRI scheduled for Oct. 28.
Oct 20. Started chemotherapy treatment (Abraxane).